Links

FND Patient-Led Organisations

These registered charities for FND provide a vital and unique voice for people with FND. Health professionals, FND groups and FND patient advocates are working together to advocate for the condition.

FND Hope (www.fndhope.org) is a UK patient-run registered charity for patients with FND started in 2015.

FND Action is a UK patient-run registered charity for patients with FND started in 2016.

FND Dimensions is a UK charity for FND focused on setting up patient-led support groups

FND Friends is a UK charity providing practical support and information to people with FND based in the Southwest of England.

FND Matters NI is UK charity providing practical support and information to people with FND based in Northern Ireland

Health Professionals

The Functional Neurological Disorder Society is a professional society of clinicians, scientists, other healthcare professionals, students, and members of the lay public who are interested in functional neurological disorders where Professor Jon Stone is a founding member of the Society.

FND Guide is a website and app designed to be an accessible resource on FND symptoms, causes, treatments, and patient stories.

myFND is a secure and friendly app that has been designed to help you with your symptoms of FND.

The Allied Health FND Networking Group is a group of Occupational Therapists, Physiotherapists, Speech and Language Therapists and Psychologists/Psychological Therapists who regularly work with people who have Functional Neurological Disorder (FND).

They provide peer support and networking opportunities for NHS therapists interested in FND and meet as a group 3 to 4 times a year online with an expert talk. You can join the group at their website link below

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Non-Epileptic Attacks is a website launched in February 2011 all about non-epileptic attacks. It’s written by a clinical team in Sheffield UK and has lots of useful information.